After the second operation

06. August 2016 Blog 0
Yesterday we got warned that the operation might take a while. So we got quite surprised when we got the phone call about Máxima’s return to ICU so early. Yesterday they called us at 1 pm while we thought it would be around 2 pm or even later. When we spoke with the nurses they also ...

The Second Operation

05. August 2016 Blog 0
Today is the day of her second operation. Máxima is the only one who is scheduled and therefore also the first to be operated on. Máxima is growing well. Yesterday we found out that she weighs the same as when Marsha was her age. At this moment of writing Shanti and I just washed Máxima. ...

Two months

21. June 2016 Blog 0
Dearest our miracle, It has been six months since we found out about your heart defect. We had two choices to keep or terminate the pregnancy. Not only once, but they offered us a few times. We chose to keep you no matter what. Even before we found out about your congenital heart defect, we ...

Six weeks old already

07. June 2016 Blog 1
Thursday, 2 June 2016 Today Máxima is 6 weeks old. It has been five weeks since her first surgery. Her blood saturation still has up and downs, sometimes it is so low that she needs extra oxygen to help get her blood saturation higher. But she does not have to wear oxygen tube. They will ...

Progress

25. May 2016 Blog 0
Every Wednesday morning, doctors and nurse who takes care of Máxima that moment will do evaluation about her. The evaluation of this morning was good. They are happy with the progress Máxima makes so far. She is now stable, her saturation is good with 0,2 L oxygen, so the doctors and team decided not to ...

Extraordinary birthday

19. May 2016 Blog 0
It never crossed my mind that I will “celebrate” my birthday in hospital. But here I am, getting older and watching over my little beautiful present who is fighting her battle. And today she is one week old. It is a miracle that she survives this far. She is our little miracle. A lot has happened since our last ...

Two weeks since the operation

10. May 2016 Blog 1
Two weeks since the surgery. It seems not a lot has changed. Máxima is still not stable. Without the help of a oxygen tube her blood saturation is still too low, her heartbeat is way too high; sometimes it reaches over 190, the last few days her belly has started to swell again, and she still gets sleeping ...

Finding the right balance

02. May 2016 Blog 0
Máxima got her surgery almost a week ago. Since that time the doctors and nurses have tried to find a good balance in her medication. Step by step they’re lowering her medication and occasionally another tube is being removed. She is still being kept a sleep because she is still to weak to breath for ...

Koningsdag 2016

27. April 2016 Blog 0
Máxima Adeline Hübner. The name Máxima was inspired by the queen of the Netherlands because our baby girl’s due date was on April 27th 2016, on this day the Dutch celebrate Koningsdag. The name Máxima means miracle worker, the greatest. Her second name was inspired by a movie “The Age of Adaline”. The main character ...

Four hours later our world collapsed

26. April 2016 Blog 1
Title sounds dramatic, But I can assure you it ends on a positive note  🙂 The operation was a success. At 2:30 pm Máxima returned to intensive care from surgery and it was then that we were told by the surgeon that everything went well. He also told that the next 24-48 hours are going ...